About GIST Support UK
GIST Support UK is a charitable trust which acquired its charitable status in April 2009. Before that time it was a subgroup of Sarcoma UK, and the two organisations continue to maintain a close relationship.
The stated objectives of GSUK are :
to promote and protect the physical and mental health of patients with Gastro-Intestinal Stromal Tumours (GIST) in the United Kingdom through the provision of information, support, education and practical advice to them and their carers;
the relief of sickness and the preservation of health in particular by promoting and supporting research with the publication of the useful results thereof and the development of more effective treatment and care for patients with GIST;
to advance the education of the general public and health professionals in all areas relating to GIST
Our Life President
Judith has been a leading member of GSUK since it was first set up as a sub-group of Sarcoma UK in 2004. She then became Chair and GSUK was set up as an independent charity in 2008. She continued as Chair, and subsequently as Vice-Chair, until her retirement in 2015. She continues to be takes a close interest in the work of GSUK.
GIST Support UK is currently managed by the following board of 8 trustees:
(Vice Chair & Patient Director PAWS-GIST)
|David Falconer (Treasurer)||
Sheena Kynoch (Secretary)
Victoria Bassett (Fundraising & Social Media)
Nic Puntis is our Chair and has been a trustee of GIST Support UK for several years. He is supported by Jayne Bressington as Vice Chair. Jayne is also Patient Director for PAWS-GIST www.pawsgistclinic.org.uk.
Our secretary is Sheena Kynoch and fundraising for GIST Support UK and for PAWS-GIST is co-ordinated by Victoria Bassett (nee Janes) and Karen Langdon respectively.
David Falconer has taken over from Lena Stoll as Treasurer with effect from January 2017.
David joined the board in 2013, following his retirement from Pfizer UK, where he spent many years working on GIST related matters.
Alex Jacobs has recently joined the Board as a new Trustee and will be helping with fundraising, social media and IT.
The Board is very grateful for the support of volunteer Sharon Bethell who organises our Patient Meetings, David Robinson who has been the mainstay of GSUK's technical support for many years and to Marion Oliver and Dave Cook who are part of our patient helpline support.
Our grateful thanks go to all existing and previous trustees who have given of their time and expertise to improve support and services for GIST patients.
These include: Barry Davis, Irene Cook, Nicola Wardle, Barbara Dore, Michael Sayers, Tim Mason, Debbie Mitchell, Terry Dickinson, Leigh Hibberdine, Patricia Thomson, Linda Butcher, Valerie Harris, Christopher Rickman.
Appointments to the Board of Trustees are normally for a period of three years, with members presenting themselves for reappointment on a rotational basis.
We are always interested to hear from individuals who would like to ensure that GIST patients are supported and that GIST research is stimulated. Please do contact us if you are able to help in any way at email@example.com.
Because GSUK is a charitable trust and not a membership organisation, it does not have a "membership" in the legal sense. However we do maintain a database of patients and carers who have contacted us for help and support, and it is to names on this database that news and information on meetings is circulated.
Our Specialist Volunteers
Sharon Bethell (Volunteer Events Manager)
Offers of support for our work are always welcome.
If you have a skill that you can offer to help with our work, we wouild love to hear from you at firstname.lastname@example.org.
GSUK is supported in its work by specific grants from Pfizer and Bayer and unrestricted educational grants from Novartis, together with charitable donations from patients, carers, and other sources. (See also our Fundraising page)
Donations and help with fundraising are also gratefully received.Donate Online to GSUKThank you for supporting our work!
Donate to our PAWS-GIST FundHelp us to Find the Cure!