A Gastro-Intestinal Stromal Tumour is rare, but you are not alone!

PATIENT INFORMATION MEETING

GIST Support UK Meeting, 19th April 2012
at The Thistle Hotel, Newcastle

Over 80 patients carers and interested professionals attended this event. We are very much indebted to Steve Hatch who has prepared the following videos of the presentations. The videos can be viewed in full screen mode. Press Esc to return from a video to this web page.

Professor Andy Hall
Director, Northern Institute for Cancer Research
Tumour Banking and what patients can do to help themselves

 

Jayne Bressington
Trustee, GIST Support UK
PAWS (Paediatric, Adolescent,Wild-type,Syndromic) GIST - an update

 

Peter Stevens
Clinical Research Associate, Newcastle Cancer Centre
Adjuvant GIST - The Evidence New approaches to the treatment of GIST

 

Dr Mark Verrill
Consultant Medical Oncologist, Northern Centre for Cancer care
Patient Choice in relation to Adjuvant Therapy

 

Judith Robinson
Chair, GIST Support UK
GSUK News, Future Plans and Discussion

 

 

Posted: 28/7/2012

 

 

Michael Sayers...news

Update on GIST clinical trials that are recruiting and in the pipeline....

Forthcoming Patient Meetings

  • Friday 17th March in Sheffield
  • Friday 6th October in Cardiff
  • Friday 9th March 2018 in London

More information will appear on this website in due course.

We have launched our first GIST patient survey and hope to gather a better understanding of the landscape for GIST patient treatment in the UK. The survey closes on 10th September 2016 so if you would like to participate please complete the survey by clicking this link

'ALT' GIST Trial to open in the UK soon! We have been alerted to a new trial that will be opening in the UK in the near future for metastatic GIST patients. Read more on our Trials & Research page 

PAWS-GIST Clinic 7 - Newsletter June 2016

GSUK attends Cancer52 parliamentary reception to raise awareness of rare and less common cancers.

GSUK Research Update 2016 - Read all about it here

NHS England's Sarcoma Service Specification consultation is open until Weds 20th April 2016.       Please register your views by responding directly via this link.                             GSUK's response can be viewed here

Cycle for GSUK! We have four allocated charity places on the RideLondon event for this year and also for 2017 and 2018. Go to our News page to find out more!

The Masitinib Trial is now open.  For further details of this trial, and to find out which centres and clinicians are involved, please go to our Research & Trials page. 

Regorafenib has remained on the NHS England Cancer Drug Fund List for GIST patients! Read more!

Can you help Professor Eamonn Maher with his research Study? If you have had, or have, two or more primary GISTs, or a GIST and another tumour, find out more at the bottom of our research page

PRESS RELEASE - UKTV announces GIST Support UK as its Charity of the Year 2015

TUMOUR BANK UPDATE: "We have been granted approval from the NHS ethics committee for our National GIST Tissue Bank which will store these valuable GIST tumour samples for research. If you are about to have an operation and would like to donate your tissue for research please email  with your contact details. Visit our Retention of tissue page for regular updates.

Scottish Sarcoma Network: Interested in attending their Sarcoma education days or finding out about the services on offer ? Read our News page

Use of human tissue
Do go to our new "Retention of Tissue" page and please sign a consent form!

GSUK funds research!
GSUK provides £20,000 from donated funds to help start a research project at the Royal Marsden. Visit our News page for further information and picture.

Funds being raised for UK PAWS GIST clinic
See our News Page for more information.

NICE approves improved treatment for ascites
The PleurX system allows the patient to drain fluid from the abdominal cavity without having to pay repeated visits to hospital. More information on our News Page.

European Commission approves three years' adjuvant use of Glivec
Visit our News page for more details.

Masitinib
A press release in February claiming the effectiveness of this drug as a replacement for Sunitinib appeared to be premature at the time. However subsequent news may be more encouraging! See our News page for more details.